AdsTalk19 with Dr Carmen Soto

29th March 2019 #AdsTalk19

Breaking the Bubble -Working in Partnership with Children & Families

Dr Carmen Soto, registrar in Paediatric Oncology, at University College Hospital London.

Find Carmen on Twitter @gourmetpenguin

Carmen describes herself as a paediacademiatrician: part paediatric doctor and part academic. Originally from Cardiff, she moved to London to study medicine at Barts and the London, before spending a decade working in Leicester. She is currently is a registrar in Paediatric Oncology, at University College Hospital London.

Carmen’s research focuses on the interaction between children, families and health services. Through conversations with patients and families, she realised that a narrow focus on healthcare settings has little relevance to children living with long-term conditions, who manage their health whilst living their lives in the real world. Meeting young people like Adam through Twitter, further developed this sense that healthcare professionals often live and work in a “bubble”, often oblivious of the way that healthcare is delivered in the real world and the impact that healthcare decisions have on children and families. Her PhD at the University of Leicester, ‘Partnership between families and professionals’ explored how children, families, and professionals work together to manage the risks of infection in children with invasive devices living at home.

Carmen’s talk was chaired by Kath Evans (see below).

Watch ‘Breaking the Bubble’ here

Further resources:

Carmen Soto (2017) Partnership between families & professionals: Managing risks of infection in children with invasive devices, University of Leicester, Thesis

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