Adam Bojelian Memorial Talks

With the support of the NHS nationally, Adam Bojelian Memorial Talks have been held annually* since 2016.

The talks, given by experts in their field, celebrate and share the values Adam advocated, promoting the best possible healthcare for patients, families and staff.

The talks are usually held at AdsPlace at the NHS Horizon Centre in Leeds. By hosting AdsTalks, the NHS shows that every voice matters and Adam’s contribution as a healthcare advocate was hugely valued.

Those chosen to talk each year are given the brief that their talk should be ‘inspired by Adam but not about him’. A hugely important part of the annual AdsTalks is the opportunity for delegates to join in an in-depth discussion of the issues raised by the speaker, sharing their own expertise and experience. AdsTalks are also known for their  practical outcomes, with positive changes in patient care being made as a direct result of the talk and discussions.

You can watch all the AdsTalks by clicking on the links below. When available, you can also link to additional resources associated with each talk.

*The 2020 talk was postponed due to COVID19.

Upcoming talk

March 2025 AdsTalk25 will be delivered by Adam Bojelian’s mother, AdsFoundation director, solicitor & tutor of medical education Dr Zoe Picton-Howell entitled ‘Law as the catalyst for optimum care not fear’.  Please contact us using the ‘Contact Us’ tab above, if you would like to receive booking details for this talk once they are available.

 

Charlie Jones presenting AdsTalk 24

‘Lessons will be learned’ we always say. Why do failings in healthcare keep happening? Why don’t we learn? How can we do things differently? by Charlie Jones

Wed, 6 Mar 2024 12:00 – 15:00 GMT at AdsPlace, Horizon Leeds, 2 Brewery Wharf Kendall Street Leeds LS10 1JR (with thanks to Horizon Leeds)

Charlie Jones leads a clinical psychology team at Southmead Hospital in Bristol. He has a passion for systemic and relational approaches to working in the NHS, and how we can create sustainable conditions for safe, honest conversations with both colleagues and patients. He has worked in the NHS since 2004 and is a dad with 8 year old twins.

AdsTalk24 was chaired by Dr Ruth Northway OBE is Professor Emerita of Learning Disabilities at the Faculty of Life Science and Education, University of South Wales, a post she held for twenty years. A learning disability nurse by background she has worked in a range of residential and community settings before moving to work in nurse education. Her key areas of interest relate to the health and well-being of people with learning disabilities, safeguarding and the use of participatory/inclusive research approaches.

Charlie Jones’ talk was followed by a lively and insightful discussion of the issues raised.

The talk (but not the discussion) can be viewed using this LINK.

We do not record the discussion to enable delegates to discuss the issues openly and freely.

‘Equality, Diversity and Inclusion in Healthcare: Moving beyond the policy to embedding in practice’ by Professor Ruth Northway

Was held at Horizon Leeds, Leeds, UK on Friday 24th March 2023 and chaired by Rob Webster

CLICK HERE TO WATCH TALK

CLICK HERE TO ACCESS PROFESSOR NORTHWAY’S SLIDES

More information

Dr Ruth Northway OBE is Professor of Learning Disabilities at the Faculty of Life Science and Education, University of South Wales, a post she has held for twenty years. A learning disability nurse by background she has worked in a range of residential and community settings before moving to work in nurse education. Her key areas of interest relate to the health and well-being of people with learning disabilities, safeguarding and the use of participatory/inclusive research approaches.

You can follow Ruth on Twitter @NorthwayRuth

Rob Webster CBE is Chief Executive for the West Yorkshire and Harrogate Health and Care Partnership (Intergrated Care System). This sees him bring together West Yorkshire and Harrogate health and care leaders, organisations and communities to deliver ambitious plans for improved health, care and finances for 2.7 million people. Rob is an active member of the NHS Assembly and contributes to a number of national programmes.

Rob has worked in healthcare since 1990 taking on national leadership roles in the Department of Health on policy, transformation and delivery. He has been a director for both the Prime Minister’s Delivery Unit in the Cabinet Office and a national public/private partnership. He was Chief Executive of the NHS Confederation between 2014 and 2016, having proven to be a successful Chief Executive in the NHS since 2007, running a number of commissioning organisations and providers of NHS services. He has chaired formal cancer, primary care, community trust and learning disability networks.

Rob is defined by a values based approach to leadership. He is a visiting Professor at Leeds Beckett University and was proud to be made a Fellow of the Queen’s Nursing Institute in 2014. In May 2016, Rob became an Honorary Fellow of the Royal College of General Practitioners. In 2020 he was made a Commander of the Order of the British Empire (CBE).You can follow Rob on Twitter @NHS_RobW

 

‘Authority, Empathy & Humility: authoritative practice in child health & welfare’ by Dr Peter Sidebotham

Was held on-line on 15th March, 2022

Note: Please click on talk title above to access Peter’s talk, as it is a power point talk with imbedded commentary it may take a few minutes to load, so please be patient.

You can look back over and join the conversation inspired by Peter’s talk on Twitter using #AdsTalk22.

Peter Sidebotham is a retired paediatrician and emeritus professor of child health at the University of Warwick. As an academic paediatrician he specialised in child protection and was the designated doctor for child protection and for child death review in Warwickshire.

Peter’s research includes studies on unexpected child deaths including sudden infant death syndrome, and work on child death review and child maltreatment. He has worked with Professor Marian Brandon from UEA on several national analyses of Serious Case Reviews. He is the author/editor of three books and several book chapters and has published extensively on child abuse and child death review.

Peter is a member of the National Child Safeguarding Practice Review Panel.

Rob Webster will chair the event. Rob Webster is Chief Executive of South West Yorkshire Partnership NHS Foundation Trust and is responsible for leading the organisation and its 4200 staff. Rob is also Lead Chief Executive for the West Yorkshire and Harrogate Health and Care Partnership [Integrated Care System]. This sees him bringing together West Yorkshire and Harrogate health and care leaders, organisations and communities to deliver ambitious plans for improved health, care and finances for 2.7 million people. Rob is an active member of the NHS Assembly and contributes to a number of national programmes.

Rob has worked in healthcare since 1990, taking on national leadership roles in the Department of Health on policy, transformation and delivery. He has been a director for both the Prime Minister’s Delivery Unit in the Cabinet Office and a national public/private partnership. He was Chief Executive of the NHS Confederation between 2014 and 2016, having proven to be a successful Chief Executive in the NHS since 2007, running a number of commissioning organisations and providers of NHS services. He has chaired formal cancer, primary care, community trust and learning disability networks.

Rob is defined by a values based approach to leadership. He is a visiting Professor at Leeds Beckett University and was proud to be made a Fellow of the Queen’s Nursing Institute in 2014. In May 2016, Rob became an Honorary Fellow of the Royal College of General Practitioners. In 2020 he was made a Commander of the Order of the British Empire (CBE).

You can follow Rob on Twitter @NHS_RobW

 

24th March 2021 #AdsTalk21

Equal Outcomes for All Disabled Children?

Dr Karen Horridge, Consultant Paediatrician Disability.

Karen is based in South Tyneside and Sunderland with over 36 years of NHS clinical experience.

Find Karen on Twitter @KarenHorridge

Karen’s current additional roles include:

  • Chair, Royal College of Paediatrics and Child Health Informatics for Quality Committee, working towards harmonisation of terminologies to underpin robust data collection at the point of care, to make each and every need of all children visible.
  • Co-Director, Paediatric Disability Distance Learning Courses, Sheffield Children’s Hospital, aspiring to educate the workforce to achieve better and more equal outcomes for disabled children and young people.
  • Clinical lead, www.disabilitymatters.org.uk and www.learningdisabilitymatters.co.uk both free resources, co-produced with disabled children, parent carers and other experts, aimed to support those who may work or volunteer with disabled children and young people to reflect on their attitudes and be more confident with reasonable adjustments to achieve better outcomes.
  • Associate editor, Trustee and Board Director, Mac Keith Press, which produces the journal Developmental Medicine and Child Neurology and red book series, both to improve the evidence-base for healthcare for disabled children and young people.
  • Previous roles have included chairing the British Academy of Childhood Disability and leading on the neurodisability training programme for paediatricians training to care for disabled children and young people.
  • Research active, with >50 peer-reviewed publications.

Karen’s talk addressed the challenges disabled children and their families face in healthcare, including prejudicial attitudes and values from health professionals, but provided solutions to address these challenges.

Watch ‘Equal Outcomes For All Disabled Children?’ here

Further Resources:

Empowering data collection at the point of care:

https://adc.bmj.com/content/100/9/815

Quantifying multifaceted needs captured at the point of care. Development of a Disabilities Terminology Set and Disabilities Complexity Scale

https://onlinelibrary.wiley.com/doi/full/10.1111/dmcn.13102

Prospective pilots of routine data capture by paediatricians in clinics and validation of the Disabilities Complexity Scale.

https://onlinelibrary.wiley.com/doi/10.1111/dmcn.13101

The Health, Functioning and Wellbeing Summary Traffic Light Communication Tool: a survey of families’ views

https://onlinelibrary.wiley.com/doi/full/10.1111/dmcn.13370 

The traffic light tool:

https://hubble-live-assets.s3.amazonaws.com/bacd/redactor2_assets/files/94/HFWSummary.pdf 

NCEPOD  Each and Every Need report. 2018:

https://www.ncepod.org.uk/2018cn.html 

Variation in health care for children and young people with a disability

https://onlinelibrary.wiley.com/doi/full/10.1111/dmcn.13899 

Variation in health care for children and young people with cerebral palsies: a retrospective multicentre audit study:

https://onlinelibrary.wiley.com/doi/full/10.1111/dmcn.12740 

Learning Disabilities matter:

https://onlinelibrary.wiley.com/doi/full/10.1111/dmcn.14591 

Disability Matters:

www.disabilitymatters.org.uk 

Learning Disability Matters for Families

www.learningdisabilitymatters.co.uk 

 

29th March 2019 #AdsTalk19

Breaking the Bubble -Working in Partnership with Children & Families

Dr Carmen Soto, registrar in Paediatric Oncology, at University College Hospital London.

Find Carmen on Twitter @gourmetpenguin

Carmen describes herself as a paediacademiatrician: part paediatric doctor and part academic. Originally from Cardiff, she moved to London to study medicine at Barts and the London, before spending a decade working in Leicester. She is currently is a registrar in Paediatric Oncology, at University College Hospital London.

Carmen’s research focuses on the interaction between children, families and health services. Through conversations with patients and families, she realised that a narrow focus on healthcare settings has little relevance to children living with long-term conditions, who manage their health whilst living their lives in the real world. Meeting young people like Adam through Twitter, further developed this sense that healthcare professionals often live and work in a “bubble”, often oblivious of the way that healthcare is delivered in the real world and the impact that healthcare decisions have on children and families. Her PhD at the University of Leicester, ‘Partnership between families and professionals’ explored how children, families, and professionals work together to manage the risks of infection in children with invasive devices living at home.

Carmen’s talk was chaired by Kath Evans (see below).

Watch ‘Breaking the Bubble’ here

Further resources:

Carmen Soto (2017) Partnership between families & professionals: Managing risks of infection in children with invasive devices, University of Leicester, Thesis

6th April 2018 #AdsTalk18

NICE guidance on End of Life Care for Infants, Children and Young People – Capturing the Voices of the 49,000

Dr. Emily Harrop, Paediatric Consultant, Helen & Douglas House Children’s Hospices and deputy Chair of the NICE End-of-life Care for infants, children and young people guidelines drafting committee.

Find Emily on Twitter @EmilyHarrop9

Emily co-chaired the NICE guideline, which NICE dedicated to Adam and another young boy. Her talked explained the guideline and focused on how the voices of children and young people with life threatening conditions and their parents were captured in the guideline drafting process.

Emily’s talk was chaired by Kath Evans (see below).

Watch ‘NICE guidance…capturing the voices of the 49,000’here

Further resources:

NICE guideline [NG61]Published date:  Last updated: 

End of life care for infants, children and young people with life-limiting conditions: planning and management

24th March 2017  #AdsTalk17

Hidden In Plain Sight – Healthcare in the 21st Century

Rob Webster CEO South West Yorkshire Partnership NHS Foundation Trust, Lead for West Yorkshire and Harrogate Intergrated Healthcare System. Visiting professor at the school of health and care at Leeds Beckett University and an honorary fellow of both the Queen’s Nursing Institute and the Royal College of GPs.

Find Rob on Twitter @NHS_RobW

Rob who knew Adam and his work and commissioned Adam’s poem ‘Leadership’ showed how compassion, humanity and individualised patient care can be embodied in corporate NHS.

Rob’s talk was chaired by Kath Evans (see below).

Watch ‘Hidden In Plain Sight’ here

24th March 2016 #AdsTalk16

Together We Can Achieve Great Things, From Rhetoric To Reality, Embracing The Spirit Of Adam

Kath Evans RGN, RSCN, MSc (Nursing), PG Dip (Education), BSc (Hons), PG Dip (Management), Institute of Leadership and Management (ILM) Accredited Coach, NHS England’s Experience of Care Lead – Maternity, Infants, Children and Young People.

Find Kath on Twitter @KathEvans2

Kath who knew Adam and his work, talked about the importance of listening to the voices of children and young people when healthcare decisions, whether individual or strategic are being made.

Kath’s talk was chaired by Gill Philips (@WhoseShoes) the founder of Whose Shoes.

Watch ‘Together We Can Achieve Great Things’ here.

AdsFoundation will be running a series of on-line workshops on healthcare law and ethics.  Please CONTACT US if you would like to be sent more information about these. 

We welcome your feedback on this and all our resources, including information of any additional resources we should include or any changes you think we should make to our existing resources. Please use the CONTACT US tab above to share your thoughts with us. Thank you

#AdsTalks are an annual event, held each year as close as possible to 24th March. Please use the CONTACT TAB above to contact us if you would like to be notified of future #AdsTalks.

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FOWARD to Adam’s Writing

 

AdsFoundation Logo showing Adam with his Gold Blue Peter Badge

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