AdsTalk18 with Dr Emily Harrop

6th April 2018 #AdsTalk18

NICE guidance on End of Life Care for Infants, Children and Young People – Capturing the Voices of the 49,000

Dr. Emily Harrop, Paediatric Consultant, Helen & Douglas House Children’s Hospices and deputy Chair of the NICE End-of-life Care for infants, children and young people guidelines drafting committee.

Find Emily on Twitter @EmilyHarrop9

Emily co-chaired the NICE guideline, which NICE dedicated to Adam and another young boy. Her talked explained the guideline and focused on how the voices of children and young people with life threatening conditions and their parents were captured in the guideline drafting process.

Emily’s talk was chaired by Kath Evans (see below).

Watch ‘NICE guidance…capturing the voices of the 49,000’here

Further resources:

NICE guideline [NG61]Published date: 07 December 2016 Last updated: 25 July 2019:

End of life care for infants, children and young people with life-limiting conditions: planning and management

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