AdsTalk21 with Dr Karen Horridge

24th March 2021 #AdsTalk21

Equal Outcomes for All Disabled Children?

Dr Karen Horridge, Consultant Paediatrician Disability.

Karen is based in South Tyneside and Sunderland with over 36 years of NHS clinical experience.

Find Karen on Twitter @KarenHorridge

Karen’s current additional roles include:

• Chair, Royal College of Paediatrics and Child Health Informatics for Quality Committee, working towards harmonisation of terminologies to underpin robust data collection at the point of care, to make each and every need of all children visible.
• Co-Director, Paediatric Disability Distance Learning Courses, Sheffield Children’s Hospital, aspiring to educate the workforce to achieve better and more equal outcomes for disabled children and young people.
• Clinical lead, www.disabilitymatters.org.uk and www.learningdisabilitymatters.co.uk both free resources, co-produced with disabled children, parent carers and other experts, aimed to support those who may work or volunteer with disabled children and young people to reflect on their attitudes and be more confident with reasonable adjustments to achieve better outcomes.
• Associate editor, Trustee and Board Director, Mac Keith Press, which produces the journal Developmental Medicine and Child Neurology and red book series, both to improve the evidence-base for healthcare for disabled children and young people.
• Previous roles have included chairing the British Academy of Childhood Disability and leading on the neurodisability training programme for paediatricians training to care for disabled children and young people.
• Research active, with >50 peer-reviewed publications.

Karen’s talk addressed the challenges disabled children and their families face in healthcare, including prejudicial attitudes and values from health professionals, but provided solutions to address these challenges.

Watch ‘Equal Outcomes For All Disabled Children?’ here

Further Resources:

Empowering data collection at the point of care:

https://adc.bmj.com/content/100/9/815

Quantifying multifaceted needs captured at the point of care. Development of a Disabilities Terminology Set and Disabilities Complexity Scale

https://onlinelibrary.wiley.com/doi/full/10.1111/dmcn.13102

Prospective pilots of routine data capture by paediatricians in clinics and validation of the Disabilities Complexity Scale.

https://onlinelibrary.wiley.com/doi/10.1111/dmcn.13101

The Health, Functioning and Wellbeing Summary Traffic Light Communication Tool: a survey of families’ views

https://onlinelibrary.wiley.com/doi/full/10.1111/dmcn.13370 

The traffic light tool:

https://hubble-live-assets.s3.amazonaws.com/bacd/redactor2_assets/files/94/HFWSummary.pdf 

NCEPOD  Each and Every Need report. 2018:

https://www.ncepod.org.uk/2018cn.html 

Variation in health care for children and young people with a disability

https://onlinelibrary.wiley.com/doi/full/10.1111/dmcn.13899 

Variation in health care for children and young people with cerebral palsies: a retrospective multicentre audit study:

https://onlinelibrary.wiley.com/doi/full/10.1111/dmcn.12740 

Learning Disabilities matter:

https://onlinelibrary.wiley.com/doi/full/10.1111/dmcn.14591 

Disability Matters:

www.disabilitymatters.org.uk 

Learning Disability Matters for Families

www.learningdisabilitymatters.co.uk 

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